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European Journal of Heart Failure 2009 11(5):433-443; doi:10.1093/eurjhf/hfp041
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Published on behalf of the European Society of Cardiology. All rights reserved. © The Author 2009. For permissions please email: journals.permissions@oxfordjournals.org.

Palliative care in heart failure: a position statement from the palliative care workshop of the Heart Failure Association of the European Society of Cardiology

Tiny Jaarsma*, James M. Beattie, Mary Ryder, Frans H. Rutten, Theresa McDonagh, Paul Mohacsi, Scott A. Murray, Thomas Grodzicki, Ingrid Bergh, Marco Metra, Inger Ekman, Christiane Angermann, Marcia Leventhal, Antonis Pitsis, Stefan D. Anker, Antonello Gavazzi, Piotr Ponikowski, Kenneth Dickstein, Etienne Delacretaz, Lynda Blue, Florian Strasser, John McMurray on behalf of the Advanced Heart Failure Study Group of the HFA of the ESC

Department of Cardiology, University Medical Center Groningen, University of Groningen, PO Box 30.001, 9700 RB Groningen, The Netherlands

* Corresponding author. Tel: +31 50 361 2355, Fax: +31 50 361 4391, Email: t.jaarsma{at}thorax.umcg.nl


  Abstract

Heart failure is a serious condition and equivalent to malignant disease in terms of symptom burden and mortality. At this moment only a comparatively small number of heart failure patients receive specialist palliative care. Heart failure patients may have generic palliative care needs, such as refractory multifaceted symptoms, communication and decision making issues and the requirement for family support. The Advanced Heart Failure Study Group of the Heart Failure Association of the European Society of Cardiology organized a workshop to address the issue of palliative care in heart failure to increase awareness of the need for palliative care. Additional objectives included improving the accessibility and quality of palliative care for heart failure patients and promoting the development of heart failure-orientated palliative care services across Europe. This document represents a synthesis of the presentations and discussion during the workshop and describes recommendations in the area of delivery of quality care to patients and families, education, treatment coordination, research and policy.

Key Words: Heart failure • Palliative care

Received January 15, 2009; Revised February 4, 2009; Accepted February 26, 2009


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